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Keratoconus
Cautions People who
handle their keratoconus problems successfully develop their own coping
mechanisms. Sunglasses are advised to reduce glare symptoms. If
contacts are worn, and since the fitting of these lenses is especially
difficult, we advise an extra pair in the event of loss. FAQ & Keratoconus Q Why do I have keratoconus and what causes the condition? A Keratoconus is a genetically determined condition. Unfortunately, the exact inheritance pattern has not yet been elucidated. Q You have said that keratoconus is inherited. How can I help my children avoid it? A You can help your children best by insuring that they have good eye care and annual eye examinations by a competent optometrist who knows your eye history and understands the condition. Q What can I do to keep the condition from progressing? A Currently, no treatment -- medical, surgical or contact lens related -- can retard the progress of the condition. It may be damaging to corneal tissue to delay replacing your contact lenses when corneal changes indicate that such changes are necessary. Q Why are contact lenses for keratoconus so difficult to fit, so uncomfortable and so expensive? A Since the keratoconic cornea is irregular, additional time and trials may be necessary to achieve the best fit. Materials, time and remakes to achieve these goals cost more money than a normal fitting. The lens need not be more uncomfortable than any other gas permeable lens on a normal eye. Q Which is the best kind of contact lens to wear? A The best lens for any keratoconic eye is one that permits the best corneal health, while allowing for the best visual acuity, without sacrificing comfort. A lens material that allows for the least corneal insult while remaining stable during production and wearing is best. Q Why must we wear rigid contact lenses? Why not soft contact lenses? A While the majority of keratoconus patients achieve their best visual acuity with gas permeable contact lenses, some early keratoconus patients do well with astigmatic or toric soft lenses and some later keratoconus patients need either hybrid soft gas permeables or even "piggy-back" (gas permeables worn over a soft lens carrier) lens combinations. Q Why is my vision not sharp, even with an gas permeable contact lens? Why do I have multiple vision? A The typical keratoconic cornea is distorted and thinned in various areas. Each distortion in shape creates areas of different depth in the sub-lens tear layer. Each of these pools will give an unclear refraction. As the gas permeable contact lens moves with each blink, vision is dynamically unstable as the pools empty and refill throughout the various stages of the blink. Similarly, multiple vision is an effect of areas of different refraction in the cornea caused by localized thinning and variation in curvature. Q Why is my vision so much less sharp when I remove my contact lenses? A Because the cornea is thinner, it's structurally less stable. This instability allows the cornea to be more easily molded. The effect of this molding is a surface of topography and, therefore, refraction different from that of the same cornea in a fresh state. The same sort of molding can occur if you sleep with your eyes resting on your hands. Q How will I know if I need a corneal transplant? A Conventional wisdom dictates the need for a corneal transplant when you can no longer be fitted with a contact lens that is tolerable to you and provides you with adequate vision for your needs. Q Need I be worried about becoming pregnant, giving birth or nursing around the time of my corneal transplantation surgery? A In general, large doses of steroid medications are used to stabilize corneal grafts and, in some cases, glaucoma medications are required to reduce intraocular pressure. It is best to plan pregnancy, birth and lactation with these considerations in mind. Arranging joint consultations with your corneal surgeon and your obstetrician/gynecologist can also prove helpful. Links for Keratoconus
National Keratoconus Foundation
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